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thankyou very much for your response. She will be seeing another specialist in 2 weeks. (hopefully more of a proffessional in this field) Thankyou for being the only person since I found out to even come close to making it understandable and giving an honest opinion. I hope you are right in your opinion and she still has a chance to receive treatment. Thanks again. I wish doctor's would understand that parents doen't want things sugar coated and most of all that a majority of us just want a decent diagnosis we are not looking toe sue anyone for being honest - even if that means they admit that they don't know everything.